All of Us Research Program
As a supporting partner of the All of Us Research Program, NACCHO promotes the initiative's aim to create a research community of one million people who will share their unique health data. The information gathered from participants will be stored in a database so that approved researchers can access this data to explore how factors like environment, lifestyle, and genes can impact health and to develop health interventions that are unique to individuals.
To meet our goal of one million participants, we need your help! Local health departments are particularly well-positioned to spread the word about this program. Learn more about the program below and see how you can get involved.
The mission of the All of Us Research Program is simple: speed up health research and medical breakthroughs. To do this, the National Institutes of Health (NIH) is asking one million people to lead the way to provide the types of information that can help us create individualized prevention, treatment, and care for all of us.
All of Us is part of NIH's Precision Medicine Initiative. Precision medicine is healthcare that is based on you as an individual. It takes into account factors like where you live, what you do, and your family health history. Precision medicine’s goal is to be able to tell people the best ways to stay healthy. If someone does get sick, precision medicine may help healthcare teams find the treatment that will work best. This initiative will help give healthcare providers the information they need to make tailored recommendations, relevant to people of different backgrounds, ages, or regions.
Program participants are asked to answer survey questions and share electronic health records (EHR), but they are always in control of how much information they want to share. Some participants may also be asked to provide blood or urine samples. The health data gathered from participants will be stored in a database. Approved researchers can access this data to explore how factors like environment, lifestyle, and genes can impact health. This may help develop new medical treatments that are unique to individuals and enable a future of precision medicine for all of us.
The below resources are downloadable and can be printed and displayed as take-away resources in your local health department's offices or posted to your health department's digital channels.
- Program Brochure (English and Spanish)
- Program FAQs (English and Spanish)
- Infographic: What is All of Us? (English and Spanish)
- Fact Sheet: Electronic Health Records (English and Spanish)
- Edugraphic: Electronic Health Records (Englishand Spanish)
- Flyer: The Future of Health Begins with You
- Flyer: How to Sign Up
- Flyer: Become Our Partner
|Webinar Name||Webinar Date||Description|
|The Public Health Implications of the All of Us Research Program||1/23/2019||This webinar aimed to inform public health practitioners about precision medicine, the All of Us Research Program, and their implications for public health. NACCHO is working to increase awareness about the program and its national launch among the public health community.During the webinar, Dr. Dara Richardson-Heron, Chief Engagement Officer and Scientific Executive for All of Us, provides an overview of precision medicine and the All of Us Research Program, as well as ways public health officials can be engaged in this national effort across communities in the United States. A question and answer session followed the presentation.|
|NIH All of Us Research Program Overview||9/5/2018||The All of Us Research Program recently hosted a webinar to explore the program’s research protocol, which provides a detailed look at the program’s plans for building a robust research resource of data from one million or more participants reflecting the diversity of the United States. The All of Us protocol contains a wealth of information about the program, from who can join and what data All of Us will collect to how the program will protect that data and who will be able to access it.|
|NIH All of Us Research Program Overview||5/2/2018||To mark the launch of open enrollment, NACCHO and APHA hosted this webinar to inform public health practitioners and key influencers about the All of Us Research Program, as well as the importance of diversity in clinical trial research. The webinar included information about ways public health officials can be engaged in this national effort across communities in the United States.|
Check back periodically for a selection of the latest news and updates about All of Us:
- Talking about the NIH All of Us Program with Dara Richardson-Heron MD (January 29, 2019)
- Minority, Underrepresented Groups Working to Bring Diversity to Research (January 1, 2019)
- Building Bridges of Trust: Why Community Relationships are Vital to All of Us (November 9, 2018)
- National All of Us Campaign Aims to Enlist a Million Genomes for Precision Medicine (November 2, 2018)
- Q&A with All of Us Research Program’s Kelly Gebo (October 30, 2018)
- Hackers Are Breaking Into Medical Databases to Protect Patient Data (October 1, 2018)
- All of Us Research Program Launches Research Hub Awareness Site (August 15, 2018)
- Precision Communication For Precision Medicine: How NIH’s All Of Us Is Tackling Patient Recruitment (August 2, 2018)
- Contribute to Health Care Research by Joining All of Us (July 9, 2018)
- Diversity in health research participants is key to finding cures (June 14, 2018)
- I handed over my genetic data to the NIH. Here's why you should, too (June 13, 2018)
- Healthcare Data Security Key Part of NIH All of Us Program (May 9, 2018)
- Pay it forward: Join with All of Us Research Program to build a healthier future (May 7, 2018)
To learn more about the program and its progress, read more of the news and media coverage.